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Literature Review of the Evidence Base for a Hospice at Home Service

By Laura Stosz

Abstract

This literature review aimed to identify the evidence base for a hospice at home service at the end of life for facilitating death at home to narrow the gap between preference and reality. This study defines ‘hospice at home’ as hospice style care provided in the home environment; this means specialist palliative care, equipment and medication is available 24/7. However, services operating under this term are not uniform across the literature. Terms encountered in the literature that are used to describe ‘hospice at home services’ or elements of it include: palliative home care, out-of-hours palliative care, hospital at home, home care, community palliative care, specialist palliative care, rapid response teams, and crisis intervention

Topics: RT, RA0421
Publisher: Centre for Health Services Studies
Year: 2008
OAI identifier: oai:kar.kent.ac.uk:24789

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Citations

  1. (2005). A comprehensive picture of palliative care at home from the people involved. doi
  2. (2002). A multi-professional short-term group intervention for informal caregivers of patients using a home palliative care service. doi
  3. (2000). A palliative-care intervention and death at home: a cluster randomised trial. doi
  4. (2000). A randomized controlled trial of a hospital at home service for the terminally ill. Palliative Medicine, doi
  5. (1996). A randomized controlled trial of the cost-effectiveness of a district co-ordinating service for terminally ill cancer patients. Palliative Medicine, doi
  6. (2000). A study of district nurses’ experiences of continuous ambulatory chemotherapy. doi
  7. (2006). A tale of two cities: factors affecting place of cancer death in London and New York. doi
  8. (2006). A unique approach to supportive palliative care. doi
  9. (2004). Advanced cancer at home: caregiving and bereavement. Palliative Medicine, doi
  10. (2002). Advanced home care for cancer patients at the end of life: a qualitative study of hopes and expectations of family caregivers. doi
  11. (2005). An action plan for community hospice nurse leaders. Journal Hospice and Palliative Care, doi
  12. (2006). An assessment of methods used to evaluate the adequacy of cancer pain management. doi
  13. (2004). An evaluation of palliative care services in the community. Nursing Times,
  14. (1999). Are some palliative care delivery systems more effective and efficient than others: a systematic review of comparative studies.
  15. (2000). Assessing structure, process and outcome in palliative day care: a pilot study for a multicentre trial. Health and Social Care in the Community, doi
  16. (2005). Assessment of quality of life, pain and effectiveness of treatment in palliative care patients. Rocziniki Akademii Medycznej w Biaymstoku,
  17. (2003). At home with hospice care.
  18. (2006). Barriers and facilitators to replicating an evidence-based palliative care model. Home Health Care Services Quarerly, doi
  19. (2003). Barriers to cancer pain management: home-health and hospice nurses and patients. Supportive Care in Cancer, doi
  20. (2005). Bereaved carers’ views of a hospice at home service. doi
  21. (2004). Building capacity to provide palliative care in rural and remote communities: does education make a difference?
  22. (2005). Cancer treatment at home or in the hospital; what are the costs for a French public health insurance? Findings of a comprehensive-cancer centre. Health Policy, doi
  23. (2004). Caregiver bereavement outcome: relationship with hospice at home, satisfaction with care, and home death.
  24. (2006). Challenges for home care nurses in providing quality care. doi
  25. (2007). Changes in symptoms and pain intensity of cancer patients alter enrollment in palliative care at home. doi
  26. (2007). Client-nurse relationships in home-based palliative care: a critical analysis of power relations. doi
  27. (2007). Clinical pharmacy services in a home-based palliative care program. doi
  28. (1998). Closure of an in-hospital palliative home care service.
  29. (2006). Communication in palliative home care: a dying son and his mother. doi
  30. (2002). Community care policy and end-of-life care: one patient’s story. doi
  31. (1998). Comparison of the high-tech service delivery experiences of hospice and non-hospice home health providers. doi
  32. (2007). Comprehensive palliative home care: a need for integrated models of primary and specialist care. doi
  33. (2005). Cooperating with a palliative homecare team: expectations and evaluations of GPs and District nurses. Palliative Medicine, doi
  34. (2006). Creating an integrated palliative care service. Primary Health Care,
  35. (2003). Decision-making in palliative and continuing care in the community: an analysis of the published literature with reference to the context of UK case provision. doi
  36. (2003). Determinants of hospice home care use among terminally ill cancer patients. doi
  37. (2001). Developing a framework for primary palliative care services. doi
  38. (2007). Developing a managed clinical network in palliative care: a realistic evaluation. doi
  39. (1999). Development and validation of a core outcome measure for palliative care: the palliative care outcome scale. Quality in Health Care, doi
  40. (2007). Differences in hospice care between home and institutional settings. doi
  41. (2005). Disseminating and sustaining the integrated care pathway for the last days of life throughout Wales. doi
  42. (2003). District nurses’ referrals to home-based palliative nursing services. Nursing Times,
  43. (1999). Do innovative models of health care delivery improve quality of care for selected vulnerable populations: a systematic review.
  44. (1999). Do social factors affect where patients die: an analysis of 10 years of cancer deaths in England. doi
  45. (1998). Do specialist palliative care teams improved outcomes for cancer patients? A systematic literature review. Palliative Medicine, doi
  46. (1999). Does hospital at home for palliative care facilitate death at home? Randomised controlled trial. doi
  47. (2006). Does persistent involvement by the GP improve palliative care at home for end-stage cancer patients? Palliative Medicine, doi
  48. (2007). Does social support from family and friends work as a buffer against reactions to stressful life events such as terminal cancer? Palliative and Supportive Care, doi
  49. (2003). Dying at home: a care pathway for the last days of life in a community setting. doi
  50. (2000). Dying at home: evaluation of a hospice rapid-response service. doi
  51. (1999). Economic evaluation of hospital at home versus hospital care: cost minimisation analysis of data from randomised controlled trial. doi
  52. (2003). Effect of a palliative home care team on hospital admissions among patients with advanced cancer. doi
  53. (1998). Effectiveness of home care programmes for patients with incurable cancer on their quality of life and time spent in hospital: systematic review. doi
  54. (2005). End-of-life care: lessons from other nations. doi
  55. (2005). End-of-life patient-controlled analgesia at home.
  56. (1999). Essentials of home-based cancer care of the elderly. Geriatric Nursing, doi
  57. (2006). Ethical issues in providing home-based palliative care: do nurses and physicians see things differently.
  58. (2006). Evaluating an education programme in general palliative care for community nurses. doi
  59. (2006). Evaluation of 3 years’ experience in a home care network for palliative care. INFO Kara: Revue Internationale Francophone de Soins Palliatifs,
  60. (1994). Evaluation of a palliative care service: problems and pitfalls. doi
  61. (2002). Evaluation of advanced home care (AHC). The next-ofkin’s experiences. doi
  62. (2007). Evaluation of palliative care at home: the families’ perspective.
  63. (1997). Evaluation of the cost of home care for terminally ill cancer patients. Support Care in Cancer, doi
  64. (2001). Evaluation of the Integrated Community-Based Home Care model. doi
  65. (2000). Evaluative research on palliative support teams: a literature review. Patient Education and Counseling, doi
  66. (2006). Expectations to and evaluation of a palliative home-care team as seen by patients and carers. doi
  67. (2004). Exploring comprehensibility and manageability in palliative home care: an interview study of dying cancer patients’ informal carers. doi
  68. (2005). Exploring district nurses’ experience of a hospice at home service. doi
  69. (2004). Factors associated with caregiver burden among caregivers of terminally ill patients with cancer. doi
  70. (2006). Factors influencing death at home in terminally ill patients with cancer: systematic review. doi
  71. (2005). Factors predicting home death for terminally ill cancer patients receiving hospital-based home care: the Lyon Comprehensive Cancer Center experience. doi
  72. (2005). Family caregivers’ medication management of symptoms in patients with cancer near death. doi
  73. (2004). Family carers’ experiences of out-of-hours community palliative care: a qualitative study. doi
  74. (2002). Family satisfaction with end-of-life care for cancer patients in a cluster randomized trial. doi
  75. (2006). Findings from multisite in-home palliative care study. doi
  76. (2002). General practitioners’ and district nurses’ views of hospital at home for palliative care. Palliative Medicine, doi
  77. (2003). Gold standard palliative care in the community. Primary Health Care, doi
  78. (2004). Health problems encountered by dying patients receiving palliative home care until death. doi
  79. (1998). Home and hospice care. Hospital Pharmacy,
  80. (2007). Home and hospital; hospice and palliative care: how the environment impacts the social work role. doi
  81. (1997). Home and inpatient hospice care of terminal head and neck cancer patients.
  82. (2005). Home care and hospice nurses’ attitudes toward death and caring for the dying: effects of palliative care education. doi
  83. (2005). Home death – the caregivers’ experiences. doi
  84. (1999). Home hospice: an important part of cancer education.
  85. (1999). Home massage for hospice patients.
  86. (2000). Home or hospital? An evaluation of the costs, preferences, and outcomes of domiciliary chemotherapy. doi
  87. (2001). Home palliative care as a cost-saving alternative: evidence from Catalonia. Palliative Medicine, doi
  88. (1992). Home palliative care: results in 1991 versus doi
  89. (1998). Home terminal care’ for patients with end-stage malignant tumor in remote rural areas.
  90. (2007). Home-based palliative care in Sydney, Australia; the carer’s perspective on the provision of informal care. doi
  91. (2005). Home-based palliative care study: site of death, and costs of medical care for patients with congestive heart failure, chronic obstructive pulmonary disesase, and cancer. Journal of Social Work in End-of-Life Palliative Care, doi
  92. (2002). Hospice at home 1: the development of a crisis intervention service. doi
  93. (2003). Hospice at home 2: evaluating a crisis intervention service. doi
  94. (2006). Hospice at home service: the carer’s perspective. Supportive Care in Cancer,15(2):163-70. doi
  95. (1995). Hospice at home. doi
  96. (1996). Hospice care and its relationship to home care services: a case study. Geriatric Nursing, doi
  97. (1999). Hospice home care”: Project to give an effective answer to the needs and requests of terminally ill patients.
  98. (2005). Hospice without walls – a health technology assessment of a palliative network summary. Danish Health Technology Asssessment. Copenhagen: Danish Centre for Evaluation and Health Technology Assessment.
  99. (1999). Hospice without walls; the story of West Cumbria’s remarkable Hospice at Home service. London: Calouste Gulbenkian Foundation.
  100. (1995). Hospice- a homecare service for terminally ill cancer patients in southern Switzerland. Supportive Care in Cancer, doi
  101. (1998). How do cancer patients who die at home differ from those who die elsewhere? Palliative Medicine, doi
  102. (1999). How do terminally ill patients at home take their medication? Palliative Medicine, doi
  103. (2003). How next of kin experience palliative care of relatives at home. doi
  104. (1997). How to read a paper: getting your bearings (deciding what the paper is about). doi
  105. (2007). Impact of a hospice home visit team on unwanted hospitalization of terminally-ill patients at home in acute medical emergencies. Presse Médicale,
  106. (2007). Implementation of SIGN 44 guidelines for managing cancer pain in a community setting. doi
  107. (2007). Implementing a team approach to end-of-life care. Cancer Nursing Practice, doi
  108. (2006). Improving access to clinical information in after hours community palliative care.
  109. (2005). Improving choices for community palliative care: a prospective 2 year pilot of a live-in support person. doi
  110. (2006). Improving the care of dying patients in the community. Nursing Times,
  111. (1994). Independent hospice care in the community: two case studies. doi
  112. (1985). Integrating theories of crisis intervention into hospice care teaching.
  113. (1998). Integration of pain education in home care. doi
  114. (2000). Interprofessional working in palliative care in the community: a review of the literature. doi
  115. (2005). Interventions to facilitate family caregiving at the end of life. doi
  116. (2005). Interventions to manage symptoms at the end of life.
  117. (2003). Is there evidence that palliative care teams alter end-of-life experiences of patients and their caregivers? doi
  118. (2006). Is there no place like home? Caregivers recall reasons for and experience upon transfer from home hospice to inpatient facilities. doi
  119. (2003). Issues and dilemmas in conducting research with vulnerable home hospice participants. doi
  120. (2006). It’s time to develop primary care services for the dying.
  121. (2002). Learner-centred education in end-of-life care improved well being in home care staff: a prospective controlled study. Palliative Medicine, doi
  122. (2006). Living along and dying at home: a realistic alternative.
  123. (1997). Low-tech hospice home care nursing guidelines. doi
  124. (2000). Macmillan Carers Scheme in England: results of a multicentre evaluation. Palliative Medicine, doi
  125. (2007). Macmillan nurse facilitators for palliative care: evaluation of a pilot project. doi
  126. (2005). Managing assistive technology in hospice homecare; implications for multi-disciplinary teams. doi
  127. (2002). Marie Curie nurses: enabling patients with cancer to die at home. doi
  128. (1999). Marie Curie Nursing service: an overview. doi
  129. (2005). Now nobody falls through the net’: practitioners’ perspectives on the Gold Standards Framework for community palliative care. Palliative Medicine, doi
  130. (2003). Obstacles to the delivery of acceptable standards of care in rural home hospices. doi
  131. (2004). Older people’s views about home as a place of care at the end of life. doi
  132. (1998). Organization of palliative medicine in hospital and outpatient sector/at home. Zentralblatt fur Chirurgie,
  133. (2004). Out-of-hospital death: advance care planning, decedent symptoms, and caregiver burden. doi
  134. (2002). Out-of-hours palliative care in the UK: perspectives from general practice and specialist services. doi
  135. (2006). Out-of-hours palliative care: a qualitative study of cancer patients, carers and professionals.
  136. (2000). Out-of-hours palliative care: bridging the gap.
  137. (2001). Out-of-house palliative care in the community: continuing care for the dying at home.
  138. (1998). Palliative care at home: an audit of cancer deaths in Grampian region.
  139. (2003). Palliative care at home: general practitioners working with palliative care teams.
  140. (2000). Palliative care crisis in the community: a survey.
  141. (2005). Palliative care for patients with cancer: district nurses’ experiences. doi
  142. (2002). Palliative care in hospital, hospice, at home: results from a systematic review. Annals of Oncology, doi
  143. (2007). Palliative care in Norway: a national public health model. doi
  144. (2006). Palliative care in primary care: a study to determine whether patients and professionals agree on symptoms.
  145. (2005). Palliative care in the community for cancer and end-stage cardiorespiratory disease: the views of patients, lay-carers and health care professionals. Palliative Medicine, doi
  146. (2000). Palliative care in the community: the challenge for district nurses. doi
  147. (2005). Palliative care services in England: a survey of district nurses’ views. doi
  148. (2005). Palliative care: challenges in caring for dying people. doi
  149. (2005). Participants’ experiences of a support group intervention for family members during ongoing palliative home care.
  150. (2002). Patient and caregiver satisfaction with end-of-life care: does high satisfaction mean high quality of care? The American Journal of Hospice and Palliative Care, doi
  151. (1999). Patient and carer preference for, and satisfaction with, specialist models of palliative care: a systematic literature review. Palliative Medicine, doi
  152. (2004). Patients’ experiences of palliative care in the home: a phenomenological study of a Swedish sample. Cancer Nursing, doi
  153. (2006). Patterns and predictors of home health and hospice use by older adults with cancer. doi
  154. (2003). Perspectives on symptom control in patients receiving community palliative care. Palliative Medicine, doi
  155. (1997). Pharmaceutical care of cancer patients in the community.
  156. (2000). Place of care in advanced cancer: a qualitative systematic literature review of patient preferences. doi
  157. (1998). Place of death and access to home care services: are certain patient groups at a disadvantage? Social Science and Medicine, doi
  158. (2003). Place of death and use of health services in the last year of life.
  159. (2004). Place of death: hospital-based advanced home care versus conventional care: a prospective study in palliative cancer care. Palliative Medicine, doi
  160. (2004). Positive aspects and challenges associated with caring for a dying relative at home. doi
  161. (2001). Practical aspects of hospice care at home. doi
  162. (1999). Predictors of family satisfaction with an Australian palliative home care service: a test of discrepancy theory.
  163. (1997). Profile of a home hospice care unit in Israel.
  164. (1999). Prospective study of home morphine infusion in 62 terminally ill patients. doi
  165. (2002). Putting cancer pain management regimens into practice at home. doi
  166. (2000). Quality improvements in end of life care: insights from two collaboratives.
  167. (2004). Quality of life in oncological terminally ill patients: domiciliary care vs hospital care. Metas de Enfermeria,
  168. (2006). Quality of life of cancer patients receiving inpatient and homebased palliative care. doi
  169. (2006). Quality of life of patients with terminal cancer receiving palliative home care.
  170. (1999). Randomised controlled trial of the effectiveness of Leicester hospital at home scheme compared with hospital care. doi
  171. (2004). Receiving care at home at end of life: characteristics of patients receiving Hospice at Home care. Family Practice, doi
  172. (2006). Reviewing a new model for delivering short-term specialist palliative care at home. doi
  173. (2007). Satisfaction levels with a community night nursing service. doi
  174. (1996). Services given and help perceived during home care for terminal cancer. Palliative Medicine, doi
  175. (2004). Shaping the practice of home care: critical case studies of the significance of the meaning of home. doi
  176. (2007). Shifting end of life care back into the community. doi
  177. (2006). Support provided by the professionals to the relatives of dying patients in Finnish hospital-based home care. doi
  178. Supportive Care in Cancer, doi
  179. (2002). Symptom control outcomes in a community palliative care nursing team. doi
  180. (2002). Symptom distress and quality of life in patients with cancer newly admitted to hospice home care. Oncology Nursing Forum, doi
  181. (1994). Symptom prevalence, characteristics and distress in a cancer population. doi
  182. (1990). Terminal cancer care and patients’ preference for place of death: a prospective study. doi
  183. (2007). Terminally-ill people living alone without a caregiver: an Australian national scoping study of palliative care needs. Palliative Medicine, doi
  184. (1997). The benefits of home care for the terminally ill. doi
  185. (2001). The contextual nature of decision-making in a home hospice setting.
  186. (2007). The cost of home hospice care for terminal patients in Israel. The American Journal of Hospice and Palliative Care, doi
  187. (2006). The efficacy of home telehealth in palliative care for oncology patients and their caregivers.
  188. (2004). The experiences of district nurses caring for people receiving palliative chemotherapy. doi
  189. (2003). The Gold Standards Framework in community palliative care. doi
  190. (2001). The idealization of dying at home: the social context of home-based palliative care-giving.
  191. (1999). The impact of different models of specialist palliative care on patients’ quality of life: a systematic literature review. Palliative Medicine, doi
  192. (2006). The influence of patient and carer age in access to palliative care services. Age and Ageing, doi
  193. (2004). The Liverpool Care Pathway for the rapid discharge home of the dying patient. doi
  194. (2004). The needs of terminally ill patients at home: directing one’s life, health and things related to beloved others. Palliative Medicine, doi
  195. (2007). The new millennium palliative care project (2000-2003); the impact of specialised GP advisors.
  196. (2006). The notion of support in a home-based Belgian palliative care team. INFO Kara: Revue Internationale Francophone de Soins Palliatifs, doi
  197. (2005). The place of death of cancer patients: can qualitative data add to known factors? Social Science and Medicine, doi
  198. (2003). The Preferred Place of Care document: an opportunity for communication. doi
  199. (2004). The role of home care in palliative care services. doi
  200. (1995). The role of specialist home care teams: views of general practitioners in South London. Palliative Medicine, doi
  201. (2005). There’s no place like home. Cancer Nursing Practice: Supplement.
  202. (1999). Thirty years’ experience with cancer and non-cancer patients in palliative home care.
  203. (2005). Transformative aspects of caregiving at life’s end. doi
  204. (2002). Twentieth-century social health-care influences on location of death in Canada.
  205. (1999). Use of resources and costs of palliative care with parenteral fluids and analgesics in the home setting for patients with end-stage cancer.
  206. (2003). Using a model for structured reflections on palliative care nursing: exploring the challenges raised. doi
  207. (2007). Using the COPE intervention for family caregivers to improve symptoms of hospice homecare patients: a clinical trial. Oncology Nursing Forum, doi
  208. (2007). Utilization of health-care services at the end-of-life. Health Policy, doi
  209. (2004). Validation of a symptom measure suitable for use among palliative care patients in the community: CAMPAS-R. doi
  210. (2004). Valued aspects of primary palliative care: content analysis of bereaved carers’ descriptions.
  211. (2004). Valuing choice: dying at home: a case for the more equitable provision of high quality support for people who wish to die at home: an economic and social policy option. London: Marie Curie Cancer Care.
  212. (2005). Variations in and factors influencing family members’ decisions for palliative home care. Palliative Medicine, doi
  213. (2003). Vulnerability of family caregivers in terminal palliative care at home; balancing between burden and capacity. doi
  214. (2002). What impact do setting and transitions have on the quality of life at the end of life and the quality of the dying process? doi
  215. (2005). What influences decisions around the place of care for terminally ill cancer patients? doi
  216. (2003). What is the best way to help caregivers in cancer and palliative care? A systematic literature review of interventions and their effectiveness. Palliative Medicine, doi
  217. (1997). What is the impact of different models of care on patients’ quality of life, psychological well-being or motivation? In: Appropriate and cost effective models of service delivery in palliative care.
  218. (1998). Where do cancer patients die? Ten-year trends in the place of death of cancer patients in England. Palliative Medicine, doi
  219. (2002). Which cancer patients are referred to hospital at home for palliative care? Palliative Medicine, doi
  220. (1994). Which patients with terminal cancer are admitted from home care? Palliative Medicine, doi
  221. (2006). Withdrawal of care at home: transfer from the ICU to provide end of life care at home. Australian Critical Care,
  222. (2005). Would palliative care patients benefit from social workers’ retaining the traditional ‘casework’ role rather than working as care managers? A prospective serial qualitative interview study. doi

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